And this one ...... transvered from the breaking news category
Chronic pain sufferer despairs
13 March 2004
By HELEN PICKERING
A nine month wait to get into Timaru's pain clinic, despite being an urgent case, has left St Andrews woman Glenda Savage believing local health professionals just do not care.
Glenda is in chronic and worsening pain. It is so severe she can get no relief from any position and medication makes little difference.
"I can't sit, stand or lie in bed. I constantly have to move around just to get some relief and I spend most of the time leaning against a wall or something."
Her problems began in 2001 when she had an accident at the gym which damaged nerves in the lower region of her spine. Although the pain was severe at the time it has continued to get worse and over the past few months she has been able to find no relief.
"I don't know how to describe the pain. I suppose its like a razor blade cutting through the tendons time and time again. It's so bad now I can't walk without a walking stick.
"A couple of weeks ago we went to the accident and emergency department because the pain was so bad."
That was a really unsatisfactory experience, Glenda said, and left her wanting just to go home. Then her doctor asked for an urgent appointment at the pain clinic for her, but after waiting two weeks and still no appointment card, she rang to find out what was going on.
"The woman told us we'd have to wait nine months for an appointment. I felt just terrible. The pain is excruciating.
"When I'm getting into bed at night I don't let Graeme (her husband) come into the room because it is so agonising lifting my feet up high enough. It's the same in the mornings getting up.
"He doesn't like to see it either. I just have tears streaming down my face.
"And showing our dogs, that's been my life but we have had to sell half our animals because its just not fair on them and it breaks my heart."
But after ringing the hospital and complaining about the wait a woman rang back – Glenda recorded the conversation – and she was told because they had complained she'd probably get in earlier.
Glenda says she is also having problems with ACC. She needs an operation but ACC is saying the injury is degenerative and age related – she is 48 – so they will not fund the operation.
"I have never asked them for anything; not wages not anything but to pay for the walking stick which I have to have.
" When I asked for the walking stick ACC sent me for an MRI scan which they paid for.
"It's got to the stage where I feel like ending it all."
ACC media adviser Fraser Folster said while he did not dispute that Glenda suffered from an incapacitating ailment, the medical information available indicated it was not due to an injury.
Because of that, ACC had declined to provide ongoing entitlements to her.
"ACC is confident it has performed the appropriate level of investigation and acquired the necessary information to fulfil its obligations to Mrs Savage in respect of this claim," he said.
However, Mr Folster added that there was now new information to hand and, though he did not want to raise Glenda's hope, it was possible ACC would relook at it.
South Canterbury District Health Board spokesperson Michele Keggenhoff said it was understandable that someone in pain did not like to wait to see a specialist.
"To fairly accommodate all people referred for specialist treatment, we have to look at their clinical reports and symptoms and then prioritise patients according to the severity of their conditions.
"Patients with chronic pain are assessed as urgent, semi-urgent or routine.
"For the persistent pain clinic, Mrs Savage will be offered an appointment in accordance with the routine priority of her condition.
"Jumping anyone to the head of the queue without regard to prioritisation simply disadvantages someone else who also is in pain," Ms Keggenhoff said.
She said in response to the dissatisfaction expressed by Mr and Mrs Savage, the director of clinical services encouraged them to lodge a formal complaint so that all matters relating to their case could be fully investigated.
"We have put Mr and Mrs Savage in touch with the independent patient advocate to support and assist them through the complaint process," she said.
Glenda said they had left a message for the advocate to ring them but he had still not done so.
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